Friday, November 12, 2010

Today's Schedule

It was my turn to stay overnight at the hospital last night. Things went pretty well, aside from the normal routines of being woken up every few hours to be poked at by a nurse. Much love to the nurses, it just makes for choppy sleep.

Julia and I have been up since 6:00. She played her DS for awhile but it was hard to do with both hands IV'd and full of tape. Then we just sat and chatted, lounging in our hospital pjs.

The plan for today is to get a CT scan this morning. Some kids don't hold still for those and need to be sedated, but Julia's had multiple ones over the past few weeks and has done great with them every time. This particular one is a radiation simulation. The results will be used to calibrate her radiation therapy (starts next week) with her body so that when she comes in, everything will be programmed to hit in the all the right places.

This afternoon she is undergoing a minor surgery to install her chemo port. The chemo is scheduled to start next week too. The port is a little piece of metal put in under her skin on her chest. It is where they'll inject the chemo each time rather than needing to start an IV.

The plan at the moment is that the radiation and chemo will both be outpatient.


Nancy said...

Hi Amanda-

Missie told me about Julia's illness. All my prayers go out to Julia and all of you. This is a terrible thing for all of you to go through, such a little girl to be so sick.

Take care and let me know if I can do anything to help.

Nancy Pace

Jess said...

I actually thought at the beginning that at least some of the tests and things will be easier for Julia because she can actually sit still : )

Thanks for keeping us posted Torey.

willa said...

Hi Amanda and Torey,

My thoughts and prayers are with you, Julia, Finn and the rest of your family. I check your webpage regularly to see how she is doing. Take care,
Vickie Doherty
Anchorage, Alaska

Elizabeth said...

You will come to love the port that they put in for Julia. I had a hickman when I had cancer and it was my best friend. To not be stuck by a needle for everything was wonderful. So sorry you are having to go through all this. You all will be in my thoughts and prayers.

Liz Rust